August 9-11 - David's House

August 9-11 - David's House

We got up to David's House a little later then planned. Between getting out of work later then planned, an accident re-routing traffic off of route 11 on the way home, having to pack, and then stopping at DQ for food it was late when we got there. But thankfully it is still summer enough to have some daylight when we got there.

The parking lot was packed and we had to park in the lower lot and then walk up the hill.

We got all checked in to dog, and then headed out to play. Levi played on the playground for a bit and then Jay and Levi went for a walk in the wagon.

Then we came in for snack before bed. Levi picked an apple for a snack. He ate most of it.

Then we headed into the living room to play for a few minutes and watch the opening of big brother. Levi likes the water opening the best, so he watched that and then to the first commercial and then headed up the stairs to bed.

He was tired and it didn't take long before he was out cold!

Levi was up at 5:30 the next morning. I kept him as quiet as I could in the room until 6am and then we headed downstairs to the playroom to play.

At 6:45 Levi and I headed upstairs for breakfast. There was lots and lots of food this time and Levi ate applesauce and half a bagel with peanut butter.

Then we headed upstairs to wake up Jay, get dressed and head to the hospital.

After his infusion (see post on infusion #44) we headed back to the house. There had been signs about a BBQ and Levi really wanted to make it. We got there just as they were packing up, but we managed to snag some food and cake and eat in the ice-cream room. Levi was so excited to eat the BBQ food!

Thank you very much to TSS for providing the BBQ and doing all the work on the house. Levi will be grateful for everything when he is older, sorry he was sad that you painted the playground and made it so he couldn't use it for the rest of our trip.

After the BBQ we headed up for nap time. Levi definitely needed it.

After nap we talked about what we wanted to do as a family and decided to go to the lake. We had a blast! Then we found dinner at Three Tomatoes and a playground to play on and get some energy out.

Then we headed back to David's House and Levi decided he needed a snack. He picked a donut!

Then it was off to bed for night 2. Levi was super excited that we got to spend 2 nights at David's House but only had to go to the hospital once.

Saturday morning he slept in a little for Jay, but they were still downstairs by 6:30. I slept in a little, as it was Saturday, and then headed down to see what they were up to. It looked like they were having lots of fun downstairs.

Jay found a cute little diner to go to for breakfast and then we were heading to the Montshire Museum. We didn't rush around, but didn't lounge either, and packed up our stuff and headed out.

Thanks for everything as always David's House!! It was so great to see you! We will be back!!

August 9 - Blood Work

August 9 - Blood Work

Good Morning. Today is the day of answers. We will either have gone back up and spending more time in limbo, or we will have dropped enough to be headed to Lebanon tonight. We got to the lab and there was a bit of a wait. So P brought the tablet out to the waiting room for Levi to play on while he waited.

Then we were headed in to the lab. Levi went right for his band-aid.

The draw was over before we knew it and Levi was off to the treasure box. P had gone shopping since Monday and before Levi could get the treasure box open she gave him the bags to choose from so that he could be the first to chose from them. There was a purple mermaid and he picked that saying that it was for me. Since he said it was for me, P let him pick another thing too and he picked the blue mermaid.

Then since it was Thursday we were off to the donut lady!

He was super excited to eat his donut in the car this morning.

Counts came in after 24 minutes today. Counts were 114. Well I guess that answers our question. We will be heading to Lebanon tonight. We talked to his doctor and got an appointment for tomorrow at 8am! It's early, but they are booked like crazy tomorrow so it was either 8am or 11am. Jay and I talked about our weekend plans and decided to see if we could get a room for 2 nights instead of 1 and spend the time up there doing something fun for Family Fun Month.

August 6 - Blood Work

August 6 - Blood Work

Happy Monday!!! Super Levi Paw Patrol was up and running fast this morning. We got to the lab and Levi wanted to check out his fountain.

We got over to the lab and there was a short wait. P had a patient. AM didn't have a patient but she has learned over the last month or so that P and Levi have an amazing relationship and not to mess with that unless you absolutely have too.

As soon as P was ready Levi went running in to pick out his bandaid.

Then he climbed up into the chair and started playing on the tablet.

The draw went quick and then we were off to the treasure box. He crouched on the side of the treasure box which isn't what he normally does. He picked an orange fox. He looked up at me and said "I am picking this for Kyle!" and stumbled over in the process. All of the sudden he was crying/screaming. I was shocked. He never cries! And he falls all the time. I went over to him and he was holding his leg, I finally got him to stand up and there was a huge scrape/scratch on his leg and it was bleeding. We got him over to P's chair again and got it washed and covered with a bandage.

Levi was picking out his sticker and P brought over 3 dollars for him to go get a donut even though it was Monday because she felt bad that he got hurt. She also was on the phone to maintenance before we had even left to get them to come up and do something about the kick boards on the wall as it was sharp. Surprising in a way that no kid had gotten hurt before, but most don't go running to the treasure box either I am sure!

Levi was super excited about his money!!

So we headed over to the donut lady!

Once we got in the car Levi really wanted his donut but he wanted to play with Kyle's fox too! It was really cute and sweet!

Once I got the fox in the seat he grabbed his donut and was chowing down happily!

Counts came in after 30 minutes, a little longer then yesterday but with everything that happened post draw it's not surprising. His count was 145, so a drop of 22 since last week. Still a pretty decent number but definitely dropping. We are going to hold off on going up for an infusion until the end of the week, gonna wait and see what his counts are on Thursday, since we are right near 150 it could go either way up or down, so we shall see on Thursday.

August 2 - Blood Work

August 2 - Blood Work

Good Morning! Levi wanted to show off his new shirt from Grammie today! He went running right to the door for pictures this morning. I have taught him well!!

Then we were off to the car for the long drive to the hospital. We got to the lab and there was a short wait, so Levi found a newspaper to look at and settled in to wait.

He was being a goofball after he read his paper!! He was definitely in a good mood this morning.

Once we headed in for blood work it was super quick and easy as always. He was off to the treasure box before I knew it. It took him a few minutes to pick what he wanted but he suddenly settled on a new green pencil.

Then since it was Thursday we were off to the donut lady! He had fun looking at the cases today while we waited in line.

We got stuck behind the weekly meeting today so it was a long wait for the donuts. The nurses and doctors are all super nice to him but they never let him go ahead of them even though it's like a group of 15 all getting special drinks, and they know all he wants is a sprinkle donut.

But eventually we got his donut and were off to school!

Counts came in today after just 21 minutes!! Was a great day! Counts were 167. No change since Monday!! That has never happened before. I wouldn't have believed it if some of the other numbers hadn't changed (LDH, WBC, RBC, etc). Still a decent number, but definitely has us all on our toes wondering when it's gonna drop below 150 and have us in Lebanon.

July 30 - Blood Work

July 30 - Blood Work

Good Morning!! We have started staying in our temporary housing as off last night. It's now a 38 minute drive to the hospital! It's going to be a long month! We finally got to the hospital and Levi asked me if P would be at the lab. I didn't want to make any promises, but I said I thought she would be. He turned the corner, and sure enough there she was! He was so excited!

He went running right in to get his band-aid. 

 After he got it open he loaded up Plants vs. Zombies, and was laughing about the grass having to unroll and the flowers grow.

 The draw itself went great as always! P has him down to science, even knowing to touch the needle to him, which is when he swivels and moves, and then put it in otherwise she will miss it while he moves. It's amazing that the two of them have this down to a science.

After the draw we were off to the treasure box. All weekend he has been talking about needing to get another Owl for daddy, as we have Tickle (his owl), a Mommy owl, but no Daddy owl. He opened the treasure box and immediately saw a red owl and grabbed it and was off before I had barely even stood up from holding his arm. Then he was off to get a sticker too!

 He gave P big hugs! And was out the door. The whole process couldn't have taken more then 5 minutes!

So here he is, Daddy Owl! So now we have the whole Owl family!

I took Levi to school and headed to work. I was standing in morning meeting at 9:30 when my phone rang and it was Jay. UGH! Not what I wanted to see! He only calls when counts are low and we are scrambling to figure out what to do. I rushed out of the meeting and answered the call stressing about what the plan was going to be, only to have him say "I have great news!" not what I was expecting. Way to give me a heart attack dear. Levi's counts are at 167! An 18 point increase from Thursday!! That has never happened for us. Once he starts dropping we just keep on dropping! So for him to increase on his own is amazing!! It makes the beginning of this week so much easier and less stressful!

Next plan: Blood work again on Thursday where I have no idea what counts will be. The poor kid is bruised everywhere, but apparently his body is fighting against those bruises!