November 22 - Infusion #19

November 22 - Infusion #19

We got over to the hospital, found an awesome parking spot, and got checked in.

Waiting in line at registration. Cranberry seems to be the one that always comes along now.

After we got checked in we headed out back and found Nurse A all ready for us. She helped Levi put his bracelet on, and had the "magic" scissors to cut off the tail. 

Then it was time to do a little work! We headed into the little room for vital signs. Levi was a little wiggle worm so blood pressure took several attempts, and the O2 stat was definitely off, he didn't want to keep it on his finger at all. He also was being a bit of a goofball with his height measurement and every time she would just get it into place and go to look at the number he would rise up on his tippy toes and raise the number up on the wall and giggle! 

As soon as vitals were done Nurse T was all ready for Levi to get accessed and start his Benadryl. The access went great. 

Playing with the mask. 

Playing with the mask. 

Getting ready for access. 

Cleaning his port. 

Pushing fluids to make sure the port access was successful.  

Getting the Benadryl started. 

The benadryl went great as usual and before long we started the plasma. Levi played in the playroom with his IV pole. Today's pole was a different type then we usually have and it had a very low black handle. It did not have feet wide enough for Levi to ride on, but with the low handle he was able to push it fairly easily and did a great job getting to the play room and back and playing in their. 

Taking the babies blood. 

Giving the baby an infusion. 

Sitting and playing. 

Pushing his pole. 

Running down the hallway with his pole. 

Dr. V came in to talk to Levi and see how things were going. We also talked about the fact that once a month Dr. V will be holding a clinic in Manchester and that they are training nurses there to be able to give plasma and other infusions. Although this wouldn't work out for us date wise often, the few times a year it does it would cut our drive in half! Which will be very nice. This should be up and running in the spring! Dr. V thought that Levi looked great with very little bruising. 

The infusion itself went ok. Levi was very spacey and either set by himself or cuddled with daddy for most of the infusion. He didn't want to sit with Mommy. We watched planes and Inside Out. Our fairly standard movie choices. The infusion went so quickly that we didn't have time to eat lunch their we figured we would stop on the drive home. He ate plenty of snacks during the infusion. 

Before we knew it the infusion was over! There was a little bit of stress at the end with a pull up that had moved out of place and a little pee on daddy's lap! But we got past it. As is the new tradition Levi went to play in the playroom once he was free! 

Then we headed home. Levi fell asleep in the car so we didn't end up stopping for food. Once we got home, Daddy went to work and Levi and Mommy went to friendly's for icecream for lunch!!

Later that night I realized that we had never gotten Levi's count while we were at infusion. It couldn't have been low or we would have gotten it for sure. So I looked it up (I love D-H's online system!) and found out that Levi's count was 216! An amazing count! We haven't seen numbers like that in about a month and that was prior to infusion! So that is great. 

Upcoming plan: Due to the holiday we will do infusion follow up blood work on Wednesday instead of Thursday. Then it will be weekly blood work until the next infusion on 12/13.