January 12, 2016 - Day 1
We got back to the hospital and checked back into clinic. The nurses attempted to get an IV into Levi, a problem that would become a big issue with this trip. They were finally able to get one into his left foot. Which meant that he wasn't able to walk. :( A major issue for a 19 month old. He got very angry that he couldn't play with the toys and stand in the play room anymore. They drew blood and we awaited the results. Dr. V wanted to make sure that the platelet count wasn't an accident (though he didn't think it was). We went and had some lunch and then came back to clinic. His platelet count was 12, we were officially being admitted.
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Last meal before being admitted. |
After what seemed like forever they got us a room upstairs and we headed up. Levi had a head cold so we were put under precautions. This meant that any time anyone entered his room they had to have on a gown, mask, and gloves. It also meant that Levi was not allowed to leave his room. This meant he couldn't go to the play room. We settled down for a long stay in a tiny room.
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Being a goober in his crib. |
Around 6:30 they started his first plasma infusion. We had signed consent, the first of many. What a freaky thing to do as a parent. Knowing that you are helping your kid, but also knowing that you are signing a piece of paper saying there could be major risks involved. The infusion was 200mL of plasma and would take approximately 3 hours. He didn't understand a tube being attached to his foot or what was going on. We put on a movie and he watched for a little while. Thankfully they had a Curious George movie, unthankfully it was the Christmas episode. Oh well Levi loved it. His dinner came and he ate really well, for the first time in several days, maybe his cold was starting to get better.
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First Plasma Infusion. Relaxing and Watching some TV. |
At 9:30 his infusion was done, and we settled in for a night of sleep. Levi slept great. I can't say the same for Jay and I, between the emotions, the tiny room, and the super uncomfortable chairs that make into beds that squeak if you so much as blink it was a long COLD night.
Let's see what tomorrow brings.
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