March 28 - Infusion #25

March 28 - Infusion #25

We got over to the hospital and got checked in. Levi ran right to the Jungle room. Then it was time to do work with Nurse A. He was very active and did not want to sit still at all. Blood pressure took 4 tries before it was good. Then we were off to the playroom to play. Levi was all over the place and making a giant mess. But he was having fun.

 Dr. V came in to the playroom to check out Levi. We talked about his past three weeks and how things were going. He took a look at him and thought that he looked great. He even commented on how good his rash/eczema was looking.

Then a student child life specialist came in to the playroom all excited to play with Levi. The two of them headed around the loop in a race, I think Levi definitely had the advantage since he had the shopping cart and he gave her the baby stroller. It was super cute. While they were running around Jay and I talked for a minute and determined that it was for the best for him to leave. He wasn't feeling good and wasn't going to be any help at the infusion, so he should just go get some sleep so hopefully he could feel better so that I could go to class after we got home.

After Jay left Levi asked to go for a ride in the wagon and to go get his snack. He loves to store it in the wagons trunk compartment. So off we went to the snack cupboard. Then Nurse T was ready for us, so we headed into the Jungle room to get accessed and start the day. Levi did a great job being accessed. The Bennadryl was started and Levi and I settled in. Levi wanted to watch Planes!

 After a few minutes of Planes a student doctor came in and wanted to hear about USS, Levi's life with it, and how it came about. It was fun to tell our story again! :) Levi was being a crazy man and climbing all over me and the ground and the chair and asking for everything except sitting still, so the story took longer to tell then usual, but she had lots of questions and seemed interested.

Nurse T and Nurse K came in to start his plasma. And then Levi and I settled in for some Mommy and Levi time. We had a snack, watched, planes, and cuddled.

After Planes was over we switched to Trolls. We also switched to the low light today thinking that Levi might sleep since he had been awake since 5am. But that was not to be the case. He did everything in his power to keep himself awake.

Part of the way through Trolls Dr. V and the student doctor came in together. That's not usually a good thing. He had Levi's labs and shockingly to all of us, Levi's platelet count was at 80! We haven't seen a number that low since we were in-patient in early 2016! I talked to Dr. V for a few minutes and he was as confused as I was. We said it was a lucky timing for an infusion, because who knows what it would be by Thursday if we hadn't gotten an infusion. He also stressed that he wanted us to do labs on Thursday to make sure the infusion had done what it is supposed to!

After that Levi and I settled in for cuddles. With about 15 minutes left of the infusion Jay came wondering in from the car. Said he was cold. I sent him down to the cafe to get lunch which we could eat in the car on the way home. Levi and I finished the infusion. Then we had our 5 minutes of free play in the play room before heading home.

All in all the day went well. A shocking number and the first time I solo did an infusion, but it went well! Thank you to the nurses who checked on me a little more then normal, and were very understanding when I had to push the call button instead of just going to get them when his pump needed assistance. Definitely is nice to know that I could do an infusion completely by myself if need be and that the nurses are so supportive! Thank you!!

We headed home, hoping not to be back again this week! Please work infusion! Please make Levi's numbers go up!!