July 11 - Infusion #30

July 11 - Infusion #30

We got over to the hospital at 9:25! Talk about close to our appointment time. Thankfully they are pretty flexible with us. Levi begs to park on purple so up, up, up we go in the parking garage. Then down in the elevator. Then we got checked in and headed out back. We put our stuff down in the Jungle room and then headed to do work! Levi was fairly cooperative with blood pressure today! Weight however... not so much!! They really need to invest in a digital scale. The fact that he can bounce on their old fashioned scale is funny in his little mind. Of course making it really hard to get an accurate weight.

 After we had finished vitals we headed back to the Jungle room as we had a surprise for Levi. I pulled out the Camp Sunshine Late changes form and showed it to Levi. He immediately recognized the camp logo and started jumping up and down. I told him that if he could get Dr. V to fill it out and sign it then we could go to Camp Sunshine on Sunday! We then counted out how many days that was on his fingers. He was jumping up and down. Once we told him he could go he took the form and sprinted down the hallway to the office/nurses station where thankfully Dr. V was standing. He starts jumping up and down in front of Dr. V saying "Dr. V Dr. V sign it please sign it!" It was the most adorable thing EVER! Dr. V had a huge smile on his face and looked at the form and then asked Levi when we were going to camp. Levi held up his little hand and said "In 5 days!" looking at all his fingers with this huge grin. Then got kinda quiet and said "If you sign the form. So Please sign it Dr. V" Dr. V got down to him and said that of course he would sign it but showed him on the form where he needed his labs from today so he would have to wait until after blood work, but that he would do it. Levi seemed satisfied with that answer and took off for the playroom!

We played in the playroom for quite awhile.

 Then Dr. V came in to the playroom with a 4th year resident. He introduced her and then she stayed and talked to us for quite awhile about how Levi has been doing. Then Dr. V came in and did his normal look at Levi and said that everything looked good to continue as normal today.

 It wasn't long after that that Nurse D was ready for us to head back to the jungle to get accessed and do Bennadryl, so back we headed.

 Nurse D did the Bennadryl manually through his tube instead of using the pump and Levi got very sleepy! i thought we might get a nap, but no such luck. He even asked for a blankie and the light to be turned off. We started his movie and he chilled on my lap for quite awhile. It was nice. I haven't gotten infusion cuddles in awhile, he's wanted the chair all to himself, so we just cuddled while we watched Cars 2.

 30 minutes after the Bennadryl they came back in with Levi's plasma. The bag was very orange today. It's always interesting how different people's plasma looks different.

Around 11:30 Jay headed down to the cafe to get lunch. Levi needed to go potty about a minute after he left so into the bathroom him and I went. One of the first times I have attempted a solo bathroom trip while he is connected and it went beautiful! Once we got back he wanted to switch the movie to crazy people and wanted the chair to himself!

 Jay came back with lunch. Levi was watching his movie and very loopy so this is what he did to his hot dog! He must have set in this exact same position for 15 minutes!

 Levi was getting antsy because he was over tired and we still had a ways to go on his infusion so we switched his movie to Mickey Mouse clubhouse and he set on my lap and watched the whole thing! He didn't sleep, but he mellowed out.

As soon as he was de-accessed he wanted to go to the playroom. He put his shoes on and headed over to play.

 He played puzzles, blocks, and trucks!

Counts had come back at some point at 174, a great number on the day of an infusion. It is the first time we have been under 200 since May 9th, and that was 194, and before that not since March 30th at 140, so his counts have been great for three and a half months now!! It's so nice to see! And so much less stressful. 

We headed out after playtime. Levi put his key in the box!

 And then Levi, Ice Cream, and I walked out hand in hand!! See you again in 3 weeks!!