August 1 - Infusion #31

August 1 - Infusion #31

We got to the hospital and Levi insisted on parking on Purple so up we went. (Really why can't purple be a lower floor?!) We got parked and headed into the hospital. Clinic was very very quiet and we didn't have any waiting all day. As soon as we got back there they took Levi right into the vitals room and got his vitals taken. He did a great job sitting still and we got blood pressure on the first try! Nurse T was on top of finding him the movies he wanted and he didn't even want to go to the playroom to play he just wanted to settle in for a movie. So that's what we did. He wanted juice and a snack and was angry that they didn't have any cookies.

His port access went great as per usual and it was only moments before his Bennadryl was started. Then we settled in to watch McQueen.

 Dr. V came in to visit with us and we talked for a few minutes. Everything was looking good. Levi had no real bruises or issues. He checked out great and we talked about Levi starting preschool. Levi and Dr. V had there normal conversation about the movie and we settled in. Levi's plasma came up soon and that was started.

 Nurse S (who was technically assigned to Levi but Nurse T was accompanying her for most things as when we had first gotten to clinic Nurse T had asked Levi if it was okay if Nurse S helped him today and he said no!) wasn't very happy that Levi was playing with the wheel on his line. He isn't strong enough/doesn't know how to close the line he just likes to play with it and make it drive up and down so we have never stopped him before, but she was very unimpressed by that. So she brought him in his very own tube line that he could play with. Although this was a great toy it also caused several minor heart attacks as people would come in and see him playing with his tube and yanking on it only to realize it wasn't the one attached to him!

After McQueen was over Levi wanted to go to the playroom so off we went. He did a really good job listening to Grammie and my words and there were only a few times that we had to stop him from running. We had a great little band going for awhile. Levi was on the drums, I was on the blocks, and Grammie had the xylophone. It was loud but Levi was smiling and happy. We also played with the planes, the cars, the puzzles, and the baby toys. We spent about 40 minutes in the playroom before heading back to the room.

Once we were back in the room we started Planes for Levi and I tried to get him to eat but he didn't want anything. He had barely touched his gold fish, though he was on juice number 4 (of 5 for the day) so I wasn't going to push the issue, I figured we would stop on the way home.

The infusion rapped up. The bag was bigger then Levi needed so we didn't have to flush the line so that helped (for some reason that always seems to take forever even though its going at the same speed). Levi was deaccessed and we headed out. He didn't ask to go to the playroom for his 5 minutes of free play, so we just walked out. He put his key in the box and we were headed home. It was only 12:30! We were going to be home early!

I asked Levi what he wanted to do for lunch. I said we could go to the cafe, we could go to subway at exit 15 (i think) or we could go to McDonald's at exit 9. He just screamed that he didn't wan't food, and wasn't hungry, and he just wanted to go home. (Hind site being 20/20 this should have been our first clue that our day wasn't going to go as expected, but it wasn't!)

So we headed to the car to head home. I hoped he would fall asleep and wake up happier and ready for some lunch and some play!!