February 26 - Hospital Stay Day 2 - Infusion #39

February 26 - Hospital Stay Day 2 - Infusion #39

Well the day started very very early! They came in for vitals check at 4am and that was it for Levi. No amount of rubbing, cuddles, quiet time was getting him back to sleep. At 4:50 I gave up and put on Toy Story 3 so that I could lay down for a few and he would be quiet. He wanted tablet time but I was hoping that he would zone to the movie so I told him no tablet until after blood work which was at 6am.

At 6am on the dot the nurse was back in to do blood work. A super easy thing with his port so it only took a minute or two. As soon as she left Levi set up and said "I can have my tablet now!" I couldn't fault him that is exactly what I said so I gave him his tablet and he played games and watched videos for awhile.

Then we ordered breakfast. Levi said he wanted pancakes and sausage and bacon so thats what I ordered. Levi wanted to cuddle in my bed and watch cupcake videos on his tablet together so he climbed over onto my bed and we curled up together to watch cupcake videos. He in on a slow saline drip to keep him hydrated and has his oxygen and heart rate sensor so he is connected all the time, but we made it work for him to get on to my bed and we cuddled up together.

It didn't take long for Levis breakfast to show up and he set on my bed and ate what little bit he was going to eat.

Levi wanted everyone to see his bacon!

 The nurse came in after that and told us that Levi's count is 25! So the first infusion stopped his platelets from continuing to decrease but wasn't enough to get them to start increasing, so we will be doing another infusion this morning. They got his Tylenol and Bennadryl started right away. And then 20 minutes later or so were back with his plasma. Levi climbed back into his own bed for his infusion and played on his tablet and watched a movie.

Around 8:30 Jay came over from David's House with breakfast for me and him. Levi was half way thru his infusion or so at that point. On his way in Jay saw Dr. C getting ready for rounds so we knew she would be in soon.

And sure enough a few minutes later she came in. We talked about the fact that his platelets hadn't gone up and that it was good that we had indeed come in on a Sunday. She asked what prompted us to go do blood work on Sunday. She was hoping that we had seen some symptoms (Levi never has any until 48 hours post a massive drop) this time, but of course we hadn't, we had taken him simply because of the vomiting. We then discussed the fact that a third infusion might be necessary but there is no way to know until tomorrow so she wants us to hang around, but since tomorrow is Tuesday and clinic will be open we can get discharged from the hospital and then spend the night at David's House and go to clinic tomorrow. We all thought that was a good idea since we would all sleep better over there and Levi wouldn't be connected and he could settle down a little in an environment he knows better. She said she would start working on the discharge paperwork and hopefully get us out of there as soon as his infusion was done. We also made the choice for the first time ever to keep him accessed when we left the hospital. The IV team had done the access and it was well stuck and made to last for a week plus, so we decided why make him go thru deaccess and reaccess tomorrow. The only negative to leaving him accessed is putting him in his car seat is very tricky and we can't pull it very tight, so we aren't going very far, but since the plan was to just go to David's House we knew we could make that work.

After Dr. C left Levi asked if he could go and get a popsicle. We said sure and he climbed onto his pole to go to the little kitchen area.

He was so excited to get out of his room and go somewhere!

And the joy of having the popsicle made him happy too. Rocket pops really are awesome!

They were pretty true to their word and as soon as his infusion was done they were in with his discharge papers. We headed to the playroom for a few minutes as is our normal routine. Levi had fun playing and really didn't want to leave. Hopefully within another year or so he will be better with a pole and we can take him to the playroom when we are connected more and not have to just watch movies and play on his tablet once he is connected.

And then around 12:00 we were out of there!

Levi was tired but excited to be in the car and even more excited when we told him that we were headed to David's House for the night. Him and Super Duper Wolf (the name he had picked out for his new stuffie) had a good cuddle on the way to get some lunch on the way to David's House!

It's nice to be out of the hospital, but always a little worrisome taking a kid with a platelet count of 25 out of the safety of the hospital. We will do our best to not expose him to much today and will have a quiet afternoon/day at David's House.