Sunday, April 8, 2018

April 5 - Blood Work

April 5 - Blood Work

Good Morning! What a morning it's been! Levi has been much better today then yesterday, but man I am exhausted. And this cold that both Levi and I seem to have is wiping the energy out of both of us!

P was on top of things this morning and the blood draw went super quick and easy! I am so appreciative when that happens and so glad that she is good at what she does! Before I could barely even blink today we were off and running to the treasure box.
 He picked the rubiks cube (or magic cube it's called) and was super excited. I am sure at some point he will mess it up and be upset and I will be watching you tube videos on how to fix it, because I am awful at them!
 Since it's Thursday and overall we have had a good week we were off to the donut lady after P. He gave her a hug and handed over his money. I only had 2 1 dollar bills today so we talked about change and what that means and he was pretty excited to have 3 moneys back from it.

Then we were off to school with him eating his donut in the car. He ate the whole thing before we got off the highway, which is only about 10 minutes! He had told me he was hungry and clearly he wasn't kidding.
Counts took a little while to come in today, was around 10:30 when they finally made an appearance. But they were good at 236! I am very glad that this cold isn't taking him down at all!

Next steps: Have a great weekend!! And do blood work again on Monday!
Posted by at

2 comments:

  1. vinod lambaApril 9, 2018 at 3:33 AM

    Hi Levi, How are you Hero. Hi Michelle i read about recombinant adamts13 given in place of plasma. You have any idea about, is it available for for USS patient in your zone.
    https://www.jwatch.org/na45102/2017/10/02/recombinant-adamts13-congenital-thrombotic

    ReplyDelete
  2. MichelleApril 15, 2018 at 9:51 PM

    Hi Vinod. Hope things are going well for you guys. The recombinant adamts13 is in clinical trials at this point. It is only in phase 1 and is therefore only for adults. We were being possibly considered for the phase 2 or 3 of the study, but were determined not eligible due to Levi's age. We have been told at this point it is still years out from being FDA approved, if it passes clinical trials. 5-10 years was the last time frame we were given.

    ReplyDelete

Subscribe to: Post Comments (Atom)