We had our Partner's in Health Intake today. Caitlin (our Family Support Coordinator) is AMAZING!! We had an amazing conversation with her and learned about a lot of the resources that are out there for us. We asked some questions that she didn't know the answer to but she will look into them for us.
One of the things I didn't know was that we can stay with Partner's in Health until Levi is 21! That will help us so much, to always have a resource that we can go to with questions and information. They will be able to go with us to school 504 meetings and advocate on Levi's behalf. They will let us know about all the things going on in our area that would be good for Levi and will grow with us and him as we travel through this journey. I am very excited to work with them.
We set up our goals for the year and what we were hoping to accomplish. It will definitely be a huge weight off of my shoulders when we accomplish some of them.
We also signed up for Parent to Parent which is a buddy program of sorts that will align us with other families in our area that are going through a similar situation (though not identical as there are no other USS patients in the area) and have a kid similar to Levi. We are looking forward to hopefully making some friends in the area.
I left this meeting feeling rejuvenated and hopeful that there are things and people out there that can help us!
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| A cute pic of Levi from the Children's Museum over the weekend. |
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